Thursday, March 31, 2011
Was it wrong for my baby to be put on a ventilater when he was born?
I had my baby at 30 weeks pregnant last July when I was 17 through an emergency c section. I didn't think I had any problems througout my pregnacy except the baby was a little small. A few days after he was born, he was diagnosed with a chromosomal disorder called Trisomy 18(down syndrome is trisomy 21 and trisomy 18 is worse). They told me he was lucky to be alive. Most people miscarried Trisomy 18 boys. The reason why I delivered early was b/c the day of delivery, they noticed a few things like contracted hands and the umbilical cord blood was going the wrong way and my placenta abrupted and I was having contractions. They cut my outside skin sideways but they had to cut my placenta like an upside down T because his head was up high. He came out and he wasn't breathing. So they put him on the vent eventually. He weighed 1 lb 14.5 ounces. He had to stay in the NICU. When he was almost three weeks old, he got a staff infection in his blood stream. He was still on the vent and had started taking a little breastmilk before but they had to stop it b/c of the infection. His chances to make it to age one was 10 percent and age ten was 1 percent. He had a few health problems and a couple of webbed toes and contracting hands and of course breathing problems. He had miniseixures too. He was a sweet little sick baby. He would open his eyes and look around and hold my hand. The last day he was alive, the nurses said he "pulled the vent tube out", so they put him on a cpap machine and he sats kept going down and down all day. I didn't want to put him back on the vent b/c they said he might start to feel pain and I did not want that at all. He died in my arms August 10,2010 when he was 27 days old. He let out a little cry(which I had never heard him do before) right before he passed. He is now happy and painfree in heaven. Some moms take the littlest things for granted. I got excited when I got to take his temperature or change his diaper. I only got to hold him three times. Some days, I couldn't even touch him. Anyways, since then I have had a lot of family problems. My mom hasn't accepted the situation(I am 17) and she hates my bf(I don't live with my parents anymore; I live in an apt that my bf pays for along with everything else). She has said some really really mean things. She calls me a whore and she says I'm crazy(when it is her who is acting crazy). She stole my phone(that my bf paid for and pays the bill) with a memory card with pictures of the baby and the only thing with my pregnant belly pictures on it. She says she threw the phone in a creek and she kept the card. On Jan 28, it was like she had evilness all in her. We were fighting in the living room and she was talking about how I let the baby(Elijah Tuck) suffer the whole time he was alive and that I shouldn't have kept him on the vent and gotten so close(I went and saw him every day and sang and talked and read the Bible). She says the nurses pulled his tube out, but it doesn't really matter. The doctors said he didn't feel pain. I'm sure he was uncomfortable often. But he had hope. I didn't want to just give up on him. When I realized his death was going to happen soon anyways, I let him go b/c I didn't want him to feel pain. I know he is better off with God. My question is How would you handle this situation? Also, My parents and brother and sister are going on a cruise next week to Cozumel. What do I do? They have booked me a spot, but I don't really want to go. I'm scared of getting trapped.
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